Living with Syringomyelia and Chiari Malformation

DSCM e.V. is the German-speaking self-help organisation for patients, families and medical professionals.

Upcoming Events

23 – 25 October 2026

Patient Days – 20th Anniversary of DSCM e.V.

Hotelpark "Der Westerwaldtreff", In d. Huth 1, 57641 Oberlahr, Germany

From 23 to 25 October 2026 the DSCM e.V. celebrates its 20th anniversary. The Patient Days offer patients, families and interested parties an opportunity for exchange, information and encounter. Show more

Office Hours

Office

Monday · Tuesday · Thursday

08:00 – 11:00

Phone

Monday · Tuesday · Thursday

08:00 – 10:30

Outside these hours please reach us by email at ed.ve-mcsd@oreub.

About Us

The Deutsche Syringomyelie & Chiari Malformation e.V. (DSCM) was founded to support those affected by these rare neurological conditions. We connect patients, families and specialists – and advocate for better care, more research and greater public awareness.

Explainer films & patient stories

What are syringomyelia and Chiari malformation?

Paul's story – living with the diagnosis (in German)

Join Our Community

Together for those affected by Syringomyelia and Chiari Malformation.

Become a member Donate now